Rare Kidney Conditions
What is the study about?
We are looking for patients with a wide range of rare kidney disease. Please visit the RaDaR website to see a full list.
Our research nurse will add your medical history and scan / blood results to the national RaDaR database - your information on this database is anonymous.
This database can then be assessed by approached researchers to answer research questions.
Your participation helps future potential research studies.
Who can take part?
Patient who have had a diagnosis of a rare kidney condition.
What is involved?
- There are no extra visits to hospital or changes to your care.
- You will sign a consent form to allow our research nurse access to your hospital notes. This is usually done via the post.
Tell Me More
I Am Interested
Please speak to your kidney doctors at your next appointment, or during your dialysis visits. Our research nurse will write to you if you have been diagnosed with a rare kidney condition.