This page is currently under development 

What is Motor Neurone Disease (MND)? 

MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.

It attacks the nerves that control movement so muscles no longer work. It does not usually affect the senses such as sight, sound and feeling etc. 

Around 35% experience mild cognitive change causing difficulties with planning, decision making and language. A further 15% of people show signs of a form of dementia resulting in more pronounced behavioural change. 

MND can leave people locked in a failing body, unable to move, talk, swallow and eventually breathe. 

MND affects people from all communities. 

MND kills a third of people within a year and more than half within two years of diagnosis. 

A persons lifetime risk of developing MND is up to 1 in 300. It affects up to 5,000 adults in the UK at anyone time. Six people are diagnosed every day. Up to 5,000 people are fighting MND at various stages of the disease. Six people die each and every day. 

Home (2025) MND Association. Available at: https://www.mndassociation.org/ (Accessed: 23 June 2025).

Available Support 

Our Safeguarding and Complex Care Practitioners are available to provide support and advice for any patients (and their carers) with a confirmed diagnosis of MND, they will act as a point of contact and work with medical teams to provide patients with the best care. They will also work with community services and volunteers from the MND Association. 

For anyone requiring support please contact the Safeguarding Team who can be contacted via telephone or email. Telephone; 0151 604 7735 or internally Ext 8915 or via email wih-tr.WUTHSafeguarding@nhs.net

Learn more about the Motor Neurone Disease Association (mnda) and what support is available. There are a series of available information for everyone including patients, carers and professionals located on the webpage. 

Please consider completion of 'Understanding my needs' document to support staff when you are attending the Organisation, this can also be uploaded into your electronic medical record for future use.  

Please let us know if you would like a flag to be added to your electronic medical record, this will highlight to staff that you have a diagnosis of MND and to enquire if you have an 'Understanding my needs' document and/or a carers passport, these support the staff with your personalised care. Don't worry if this is not the case, if you would like any of these documents please make the staff aware and we will support you to complete these. In all other cases staff will ensure that all discussions involve both you and your identified carer, no decisions about you without you.